The talk no one likes to discuss or have.
The talk no one ever seems to be ready for.
How can you prepare for something that makes so many people uncomfortable?
Let me again say, no one is expecting Patrick to not make it through surgery. We’ve been told it’s rare that children die on the table. This is still a conversation many people must have at some point or another. It’s particularly difficult when it’s your own child.
Patrick’s father was up for the weekend to see him (for those who don’t know, we are divorced, he sees him fairly often) and we had a couple conversations regarding what the other thought regarding resuscitation. Not an easy conversation.
What do you do? What do you say? Many thoughts and questions come to mind.
Some will say he has been through enough. Some will say he’s always come through. Some will want the chance to say good bye. Some will ask would he still be Patrick after?
Some family members have shared their thoughts with us already.
How many of you would be able to make that choice for your child? Do you think you would be able to tell if your child is suffering or not?
Could you make the decision selflessly? It’s difficult as a parent, because that’s not the way it’s supposed to be! Your child is going to outlive YOU right!?
We haven’t come to a decision yet. I don’t think either of us are ready yet to do so. I want to speak to the Doctors once they have the plan and get their thoughts on everything. I want to have as much information as possible about this before making that decision.
What we do know is that since Patrick’s last cranial vault expansion, his health has not gone back to was it was prior to that.
We are NOT looking at this and expecting a negative outcome! We are NOT planning on saying goodbye!
We DO have to be prepared and accept the reality of the situation and make decisions in the best interest of Patrick.
How do you think you would/will cope? What things would/will come to your mind? How difficult do you think it would/will be?
We’d love to hear your thoughts/experiences.