First video blog! 🙂 They will get better I promise! 🙂
Have you ever thought about what exactly you do in a day?
Have you ever thought about how easy your life is? Easy you say? My life easy?
Take a moment and think about what you did this morning when you got up and started your day.
You got yourself out of bed – you went to the washroom – you brushed your teeth – you had a shower – you got dressed – you made coffee/tea – maybe you had time to read the paper or check emails before jumping into your car and heading to work, the gym, shopping or where ever.
Does any of this sound familiar at all? I’m positive some of it applies to many.
You’re lying in bed awake, ready to get up. But wait…you can’t! You have to wait for someone to come help you get out of bed.
Perhaps you’d call out to someone to come help you…but wait…you’re not able to speak. Maybe you use an augmentative communication device to speak for you, you might be able to use it to help you get someone.
Now…someone has arrived to help you get up. Maybe they even need to help you get dressed. Perhaps you need help using the washroom. If you need help for these things, you’re going to need help in the shower as well, right?
What if you couldn’t eat anymore? What if you could, but it wasn’t recommended you do, due to health risks it would cause if you did. Imagine being fed through a tube in your nose or your stomach. Not being able to taste food anymore!
Those a just a few thoughts for you to think about at the moment. Stop and really think about it. What if that was you? How would you feel?
Now let’s see, based on the above questions, let’s surmise that you aren’t able to walk, so you would likely be in a wheelchair. (Let’s make a little side note here that there are many types of disabilities and not all of them require use of a wheelchair or other assistive devices). Let’s also assume that because you can’t eat orally, you have a g-tube with which you get your nutrition.
Did you walk to your car or to work or the gym today? There are literally thousands of people who weren’t able to. Have you ever thought about getting around in a wheelchair? Think about some of the places you go and take a visual as to how accessible they are? Are there ramps? Automatic buttons for the doors? That are in reach? Are the doorways wide enough for your wheelchair? Are the things you use everyday within reach for you?
Seems like a lot to think about so far doesn’t it?
On the other side of the coin so to speak, what if you were the one who was helping that person everyday? Circumstances are different for everyone and every situation it’s true, but suppose you had to get someone else ready to for their day before you could get started with yours. Oh wait, this is how you start your day.
What if you were the parent and this was your child? There are thousands of families that do this everyday! This is their life!
How would you cope/handle things? Do you think you could? Without complaining?
Imagine all the things you will have had to learn and the all the things you’ll continue to learn. All the Doctors, therapists, nurses, teachers, suppliers of equipment and things your child needs. All these people remember are multiples!! In other words, there are a number of doctors/specialists, there could be anywhere from 1-5 therapists, multiple nurses and teachers and a limited number of suppliers for your equipment and supplies needed.
Think about work. Is your boss wonderful and patient enough to let you answer those calls from the school where you might be needed? How about all the doctor’s appointments and tests/procedures your child may have? What about the hospital stays? Staying 24/7 at the hospital with your child because no one knows your child like you do! No one there would understand your child’s communication either. Who is the best advocate for your child? YOU!!
watch the video for the rest….
Here is the link for Easter Seals Drop Zone 2013 🙂
Thank you so much!!