Summer so far

Patrick’s Summer – 2011

Patrick is having a busy summer.  Quite a number of appointments this summer, new orthotics are being made and looking at some different ideas for seating to keep him sitting up straighter and better in his wheelchair, along with a number of other follow ups regarding his potassium levels and his blood pressure.  We have recently found out that Patrick’s kidneys are only working 60-70% normal, so he is being followed closely to keep an eye on their function.

Casting for new Orthotics

Patrick started attending respite this summer, two weekends and 1 week away throughout June/July and August.  He has been enjoying them.  The week in August is the first time for that length of time he’s been away with people he didn’t know.  He’s had a couple rough moments, but overall enjoying himself.  He has gone to the movies, bowling and gone on some walks, done crafts…attempted some swimming and more.

Patrick will be attending Drama Camp again this year.

This program is put on for children using Augmentative Communication Devices, through Thames Valley Children’s Centre and The Original Kids Theatre Company.  There were 2 sessions, morning – for those attending for the first time, and afternoon – for those who have had experience already attending.

Patrick will attend the afternoon sessions, going down to the theatre with one of his respite workers via para-transit, Monday to Thursday for a week.  Friday morning they put on the performances.

They are doing 3 plays.  The True Story of the 3 Little Pigs, Sounds of the Night and The Eighth Dwarf.  Each child has their lines for the plays programmed into their communication devices prior to the camp.  Patrick reminds me every day to go over his plays with him, so he can do his lines! All the plays were written and directed by one of the Original Kids.

Each child was paired with one of the Original kids for each play to help them along when necessary.  The first 3 days were spent rehearsing the plays.  Thursday was dress rehearsal day.  Friday morning both groups, morning and afternoon, put on their plays for family and friends at the Spriet Family Theatre, downtown in the Covent Garden market.

All the kids have a great time!  They receive a certificate, a poster, a shirt, and a program.  Wonderful memories indeed!

We will be starting to work on our school time schedule for mornings and bedtimes to help get a head start on the routines he will be using for school.  He’s going into high-school; it will be a big change for him.  We went out a couple weeks ago to get his school uniforms.  He’s been counting down to school all summer!  He is excited and happy that school will be back soon!  He can’t wait to see his friends and the EA’s!

Trying on School Uniforms for Highschool



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